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BXO help needed 40bxo - bxp 2bxo my son 10 yrs old. 1Alternative Medicine & Holistic Treatment of Phimosis, Paraphimosis, and BXO (Balanitis Xerotica Obliterans), Swolen, Closed or Sleightly Tight Prepuce, Unable to Retract... Use Homeopathy. 1bxo (balanitis xerotica obliterans) 2Balanitis Xerotica obliterans-BXO 1

 

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BXO treatment... Page 19 of 19

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So I can't retract my foreskin when flaccid because of BXO, and when I try to stretch my ring, it ended up creating an ulcer and then creating scar tissue which is even harder than the BXO skin.

So what the heck do I do? I've tried blow drying my penis but it dosen't really do anything. The only way I know I will cure this problem is if I can keep the foreskin retracted, but I can't do that, the skin simply will not stretch.

Running out of ideas here, might consider surgery but I don't want to. The key to this is keeping the skin dry, and it just seems impossible with me.
[Edited by cato88 on 2019-05-20 21:55:39]
 
cato88 last year
1 month update.

Been using the DMSO+TTO almost everyday, I have made progress. Lots of BXO skin peeling off on the outside of the foreskin, but the inside of the foreskin is incredibly hard to peel for some reason, I'm guessing it's because of the moisture. I can't retract my foreskin when flaccid so keeping it dry is an issue. I've used a talcum like powder that helps keep it dry but at the same time I'm not sure if it's really doing anything.

Keeping dry seems to be the key, but without the ability to retract my foreskin, I have no idea if I can get the inner foreskin to peel.

Masturbating seems to make it worse but I'm not entirely sure. What's also weird is I keep peeling skin all the time, i'm not sure if this BXO skin has layers to it or something, or it keeps coming back, which means I'm not getting to the root cause.

Will post again
 
cato88 last year
I have just read through this entire forum, and it has given me hope in managing this strange and terrifying issue. I'm 25yo and have had BXO for about 3 years. First it was a phimosis ring around the foreskin, which i managed to clear with a steroid cream. Now however the discoloration has returned and spread to the glans (mostly around urethra opening). After a trip to a urologist, he just prescribed another round of steroid ointment. Based on my research, this just helps keep the BXO at bay, or slow the progression. I am desperately trying to heal myself in anyway- as i am terrified at the prospects of this developing further. This has definitely taken a toll on my mental health- meditation helps manage stress.

I have changed my diet to exclude dairy, all sugars, and limit carbs. Don't smoke, and have decreased alcohol consumption.

I keep my foreskin retracted to keep the affected regions dry as much as possible, and always pat down after urination.

I have been taking red clover for about a week based on the recommendations in the thread, and intend to try applying TTO as recommended, and mixing with DMSO if TTO alone is not doing anything after a few weeks.

There is 8 years worth of information in this thread, and not much activity recently. I value what i've learned here, but I would really appreciate if anyone whose done the TTO/DMSO treatment can comment on the efficacy. Can anyone comment on the use of protopic, or even topical testosterone as i've seen on some french forums?

Paging anyone who has ever commented on this forum: BaryLangston, dragonreborn, greaneyr, draytek, fox25, london2014, ib_65, bartmh, jhaha, jomppa, Ccone, gemini33, radiator, dfrance

I know many of you haven't posted in years. I hope it is because the TTO/DMSO treatment was effective for you, and not a complete loss of morale. I will post updates here, and hope someone will respond soon. I could use the support, and would love to hear success stories. Thank you kindly.
 
Olu last week
Hi Olu - sorry you're going through this too :( It's lousy
I think I was very close to resolving my issue and quit treating it too early. Since then it's been a process of treating and quitting every few months. Like you, my issue is my urethral meatus and just inside the urethra as well. I've often thought of getting a urethrotomy or urethroplasty... but never a circumcision. But I'm too afraid of complications, one of them being ED.

I've never gone to a doctor since my first discussion when he said I just had a mild case of vitiligo, so I've never tried anything prescribed like steroid creams...

I don't come on here too often anymore - if you want to chat more in depth on a faster frequency you can e mail me, onmyowntime at hotmail dot com Not sure if this site permits me telling you that (so this message may get edited or deleted). You used to be able to send private messages here but I can't see that option anymore.
I should probably do some drastic diet changes, I'm not unhealthy and I do eat quite well, but there is definitely room to improve.

Talk soon.
 
dragonreborn last week
Guys I really need help, I’m so depressed and I just don’t know what to do anymore. I’m not sure when it all started for me maybe 5-6 years ago. I’m 22 years old right now. I am circumcised and I’m pretty sure I have LS. I haven’t been to the doctors in years because I’m so embarrassed about my issue. Along time ago I went when LS first started and I was a kid and my parent was in the room so I told him that I caught my penis in my zipper. He dismissed it and did nothing about it. It progressively has gotten worse. It started as a flake of skin that I peeled off the head of my penis and I remember there was some bleeding. It all started from there. Since I was younger and my penis was still developing I know have sort of a lesion/spot where my glans isn’t symmetrical to the other it’s almost like an indent. I’ve been following all your advice. As of right now my entire glans is almost covered with the hard white skin and it has moved to the skin below my head on my shaft. Basically the top of my head is fine. I use to dry masturbate and I think this made it a lot worse. I also worked out ALOT and I think that made it worse. I was seeing some progress to my head of penis new skin coming out I was really happy. And then I stared peeling some skin I thought was ready to come off right by where my main “lesion” is. I peeled where the shaft meets the head and almost a little chunk of skin came off. It was really painful and started bleeding. Basically I’m hoping that someone has a secret to growing skin back on the penis. I’ve been applying like a cut/burn healer almost like a petroleum jelly and it’s only been 1 days but I’m seriously worried and I don’t really want to go to the doctor with everything going on. Also how one side of my glans is under developed compared to the other is there a way to reverse this? I want my glans to be symmetrical again. God I really wish I found this thread sooner. Guys I really need help I’m in a really bad place. I lost the woman of my dreams because we stopped having sex cause it was painful and this has just ruined my life. My penis looks so bad at the age of 22. Even if the white skin is gone it’s going to look abnormal with a chunk of skin missing. It’s been 5-6 years since that first peeling turned into a lesion and I’m scared that there is no reversing it. I’m hoping there is a way to reverse the skin missing. If someone can give me advice on testing this god awful disease if you have experience in open wounds on the penis etc I would Greatly appreciate it. Should I just buck up and go see a doctor? I should have done that years ago I’m at the point where I think it can’t get worse. Every time I take a pee I am ashamed. Why is god so cruel sometimes:( please be my angel and lend a desperate man a hand. Thank you.
 
Longjon last week
Longjon,

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1. Tea Tree Oil (TTO):
LS seems to sometimes have a bacterial, fungal, or viral cause, so TTO is a good treatment to try, as it's effective against all three (in addition to anti-inflammatory effects).
Source: draxe[dot]com/essential-oils/tea-tree-oil-uses-benefits/

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2. Ozonated Olive Oil (OOO):
OOO has been found to have regenerative effects in LS-affected tissue.
Source: ncbi.nlm.nih[dot]gov/pmc/articles/PMC6017296/
OOO creates a mild oxidative stress that stimulates tissue regeneration, and has antibacterial, antifungal, antiviral, and anti-inflammatory effects.
It changes gene expression to turn on hundreds of genes involved in tissue repair.

I like this OOO: amazon[dot]com/PurO3-Ozonated-Olive-Oil-Fully/dp/B00BI1743Q/

------------------------------------------------------
The indent you mention might lessen or go away completely once you resolve the condition.

I'm an engineer who's been doing research to cure my condition. I'll post more here tomorrow.
 
ScottSummers last week
So you think I should try OOO on my gash? I don’t want to put on anymore tto until this abrasion is healed, it’s quite painful. Starting to think I should go to the doctor and try and get steroids
 
Longjon last week
Many studies have found OOO to accelerate wound healing in e.g. burn patients and in rats given skin wounds. Studies use 1 or 2 applications per day.
Example: ncbi.nlm.nih.gov/pmc/articles/PMC2698179/
It seems trying OOO could further eliminate the possibility that a bacterial, fungal, or viral infection is present.

The corticosteroids that are prescribed to decrease the inflammation in LS that's damaging the skin should *definitely not be using on wounds that are healing.*
"Anti-inflammatory corticosteroids significantly impair wound healing... [Corticosteroids] delay the appearance of inflammatory cells, fibroblasts, the deposition of ground substance, collagen, regenerating capillaries, [wound] contraction, and epithelial migration."
Source: jamanetwork[DOT]com/journals/jamasurgery/fullarticle/390751

TTO has been found in some studies to have a beneficial effect on wound healing, and to not inhibit healing, which is a concern whenever an agent with anti-inflammatory properties is used. But those wound-healing effects might be no better than what you'd get from a conventional anti-bacterial ointment. And there are more studies supporting the use of OOO in wound-healing than TTO.

------------------------------------------
I do recommend you see a dermatologist. (If you're currently low-income, see if you qualify for medical coverage in your county.)

You should maybe get a biopsy to confirm you have LS, since it's more common in uncircumcised men.
 
ScottSummers last week
1. Tacrolimus:
If a doctor prescribes you a corticosteroid to reduce the inflammation of LS, I'd also ask for the immunosuppressant topical Tacrolimus, and alternate it with the corticosteroid. They reduce inflammation by different pathways, and alternating gives the skin a chance to rebuild from the damage that long-term use of corticosteroids do (inhibit collagen synthesis and cause dermal atrophy... thinning the skin).

------------------------------------
2. Estradiol:
I'd also ask the doctor about using the estrogen topical Estradiol at the same time as the corticosteroid. Some LS patients use that to thicken the skin, and it doesn't cause any systemic change in hormones.
Source: urmc.rochester.edu/ob-gyn/ur-medicine-menopause-and-womens-health/menopause-blog/august-2015/does-estrogen-help-age-skin-better.aspx#:~:text=systemic


------------------------------------
------------------------------------
I recommend using the knowledge-management program EverNote to organize your notes on this subject. Bring notes when you see a doctor.

BTW, can you guys click the Heart button in the lower left on my posts? Maybe then their system will begin to let me post links to sources.
 
ScottSummers last week
Yeah I really need to go see a doctor, how do they even identify if it’s LS? I’m pretty sure it is. I have the symptoms and the tto seemed to be helping up until my skin tore near the base/head. Do doctors actually do some kind of test or do they just look at it? I’ve heard of doctors dismissing as fungal infections or impetigo. I think my ls was caused from injury.
 
Longjon last week
ScottSummers,

Thank you so much for putting these resources together. I'm convinced you need a combination of approaches to deal with BXO: prescription medicine, natural oils that promote healing (like TTO/DMSO), and diet changes.

I have the BXO discoloration in the glans, and ring around the foreskin (although not tight or raised- that was treated 3 years ago with steroids and subsided). A month ago the issue resurfaced on my glans, and after seeing a urologist, I have been applying betamethasone dipropionate 0.05% 2x a day to the affected regions on the forskin and glans. How long is too long using a round of steroid cream? Should i decrease how often i apply. I have seen almost no resolution of the discoloration on the glans. I'm seeing a dermatologist soon, I hope to assemble a good notes in time for the Dr visit.

Can i ask, how progressed is your discoloration/etc? You seem very knowledgeable, and I would really like to hear what your treatment plan is. There are some blogs, where people document wonderful recoveries using natural approaches. Search blogspot obliterate-bxo, and balantisxo(dt)cm.

You mention Tacrolimus (immunosuppressant topical) which i also read about in a few studies. Do you believe it is another palliative drug like steroid creams? Or do either of them actually deal with the root cause. Some suggest it is urine, so keep your forskin pulled back, and dry plenty after urination/sex.

You also metioned Estradiol (estrogen topical), this may work for women with LS, but would it help for males? I actually read about topical testosterone being used to treat LS in males, with actual reversal of disease. Search for topical testosterone Secrest, MD.

Really appreciate everyone's contribution. If anyone wants a full document of this forum summarized by commenter from the past 8 years, drop me your email

Dragon Reborn,
I will definitely drop you an email, just trying to learn as much as possible about this, and how to fix the progression. What was your most successful approach you had when initially treating the discoloration. BTW, i read the suspected root cause (urine drip), can be better controlled with Kegel exercises.

I am going to take a break from the topical steroid i've used for the past month, to try a go at using Tea Tree Oil, mixed Emu oil. I understand the benefit in causing a peeling effect, and will see where i can get with promoting new skin growth. Look into Ozonated olive oil, there are a few fresh studies on it and suggest it may help- i am trying this product in conjunction with the TTO. Just taking a shotgun approach.

Longjon,
Yes I highly recommend you visit a doctor. Potent topical steroids are ultra helpful in early stages, especially for the phimosis (foreskin tightening). For me the issue returned, and unfortunately spread to the glans. Its really upsetting, there doesn't seem to be a cure- only palliative treatments that slow progression. I recommend you try to cut sugar, and dairy out of your diet- some seem to think this is some sort of infection that needs to be purged out.

I am really happy that there is some activity on this forum again! i would really like to hear from older users, on how you may have managed or reserved the disease.

Cheers everyone, try to keep an optimistic mindset. I struggle all the time, but i think there is a chance rigorous treatment can clear and cure the issue.
 
Olu last week
Unfortunately I’m like 6 years into this disease, I was too scared to go to the doctor for the longest time cause I was underaged and my guardian would have been in the room and before you know it all this time has passed. Does anyone have any advice on rebuilding skin on the glans? One side of my glans is smaller than the other because I ripped off skin years ago that was peeling and that’s when it all started for me. Man this disease has given me some serious depression and anxiety. We can only hope for a cure. I miss dating :( how do you guys deal with telling your significant other about the disease? I’ve been too embarrassed to get involved with a girl these last 6 years. Sucks I use it be so happy :(
 
Longjon last week
Olu said Dragon Reborn,
.... What was your most successful approach you had when initially treating the discoloration. BTW, i read the suspected root cause (urine drip), can be better controlled with Kegel exercises.

I am going to take a break from the topical steroid i've used for the past month, to try a go at using Tea Tree Oil, mixed Emu oil. I understand the benefit in causing a peeling effect, and will see where i can get with promoting new skin growth. Look into Ozonated olive oil, there are a few fresh studies on it and suggest it may help- i am trying this product in conjunction with the TTO. Just taking a shotgun approach.

Endorse Post  


Hi Olu,
My initial approach on finding this method was pretty aggressive. I was applying the 50/50 TTO & DMSO probably about 15 times a day. I'd have my bottle of them mixed and a q tip, and while at home I would apply every half hour between getting home from work and going to bed (I was single at the time so it was easy to do). Then before bed I'd coat my penis in emu oil after my last treatment. It actually go pretty painful and really started to get sore after a couple days so I decreased to about 5 times a day. The peeling was incredible. Once it started I would use less TTO and tried to keep it dry. Then I found out about Perrin's creme complete - I'd put that on before going to work or bed in conjunction with the TTO & DMSO.
I feel like I was either applying something or peeling any edge that I could grab with tweezers on a daily basis for about 3 months. Made some massive progress.
I also ended up getting Perrin's Blend which is like dark red tar - I'd smear that on my glans and frenulum area, roll my foreskin closed and use first aid tape to keep it closed (it melts to liquid and stains terribly) for as long as possible at while at home.

Urine drip has never been an issue with me - I've always been super conscious of my penis being clean and I basically milk out every last drop and also wipe the tip every time I pee. Been doing that since I was a teen because I found the whole drip thing really gross.

Never heard of OOO until today on this forum - definitely going to check it out. Maybe I'll be on here more regularly after all.

Take care everyone.
 
dragonreborn last week
Longjon said I miss dating :( how do you guys deal with telling your significant other about the disease? I’ve been too embarrassed to get involved with a girl these last 6 years. Sucks I use it be so happy.

You should definitely get it checked out if it's that serious. At least to confirm in case it's something else. It's a penis - awkwardness goes away and having it looked at by a physician gets easier.

I was single when I was first treating it. I attacked it full force (see my previous post from today). But then I started seeing someone and took a long break (also thought I may have one the battle). It came back because I stopped too soon. I took over a year before I started seeing small signs it was graually returning. Explained it all to my wife - she's very understanding and also doesn't notice the changes as easily as i do. I actually do a lot of my treatment in a frequent manner when she gets her period lol. She knows I post here too and she thinks it's great that we're all supporting each other through this.

Get it looked at (make sure you know what it is), start taking the appropriate steps, keep a positive outlook. Even if you can't cure it completely and perm, you can likely get back to a virtually normal life if you have BXO and can adopt some of the practices the guys on here have documented.

Remember, we aren't doctors. We're sharing experiences. Gather as much info as you can to make an informed decision on your approach. You'll get to a better place in time 👍
 
dragonreborn last week
I really appreciate your hopeful wishes and experience. Even when I get rid of all the white skin I’ll have a chunk of skin missing from one side of my glans:( so mad at myself for not taking care of this sooner. I wonder if when I get all the white skin off, maybe I can trigger skin regrowth on my glans. I don’t know. I’m going to try and go to the doctor soon. Sucks cause I now have really bad anxiety from everything going on in the world and this disease doesn’t help my self esteem. I told my dad I would go to the er and run tests to make sure it’s just anxiety but I’m also scared they will want to give me Xanax and although it helps I’m scared of what it will do to me. I was addicted to blank for a longtime due to depression because of this disease and I don’t ever want to go back. Guess I got more issues than bxo. If someone has any advice on skin regrowth after getting rid of the white skin please let me know. I think it’s impossible for me at this point to get back to normal because my bxo was triggered by trauma to my glans and the indent in the skin is flush with my shaft and I don’t think I’ll be able to get healthy skin back there. I had some peeling in that spot/ lesion and I peeled it and I bled pretty bad and it’s pretty painful. This was a couple days ago it has gotten better. I’m going to apply ointment till it’s decently healed and then I think I’ll go to the doctor. What’s another couple weeks, it only took me 6 years of letting my penis get ruined to finally want to go to the doctor. I swear if I can revert my junk to the way it was 6 years ago I would be so happy. Pray for me boys... thanks again for the input dragon
 
Longjon last week

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