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Macular Distrophy

Hello,

First of all, thanks for having this website and helping so many people :)

I was diagnosed an unidentified form of macular distrophy two years ago. I started noting some of the symptoms maybe five years ago but wasn't really aware of them. It progress really slowly, hardly even noticeable until I got diagnosed. Since then it has got much worse, and I know that has to do with the fact that I now know I have it. But in the last few weeks it has gone worse and today I'm seeing a lot of distortion, particularly with my right eye.

I still don't experience black holes but the distorsio is quickly transforming to bluriness.

I live in Philippines, working as a volunteer, originally from Mexico. What treatment should I follow?

Thank you very much
 
  dnumdanielem on 2012-01-13
This is just a forum. Assume posts are not from medical professionals.
I read on someone elses topic that these questions were asked so I have addressed them as well

Thanks again!

1. ID
Daniel

2. Age
32

3. Sex
Male

4. Single/Married
Soon to be married

5. weight
73 kgs

6. Height ….
180cms

7. country
Living in Philippines

8. climate
Humid/hot

9. List of your complaints
Macular dystrophy causing
blurriness, distortion of sight affecting mainly central vision

10. Since how long are you suffering from each complaint
About five years, diagnosed 2 years ago and getting worse in the last 6 months, much worse last week

11. Diabetic or non-Diabetic
Non diabetic

12. Desire sweets/sour/salt
Salty food, eat lots, but quite healthy. Try to eat lots of vegetables and avoid msg, salt, fat…overall balanced diet. I need to eat a lot as I have a very fast metabolism. Eat large amounts of food, more if I’m exercising. No overweight problems, actually tend to look on the thin side

13. Thirst
Try to drink at least 2 litters of water a day

14. Tongue and Taste
Fine

15. Current BP (without medicine and with medicine)
No medication being taken for condition. Take vitiamin supplements to complement diet and assist getting antioxidants for eye sight

16. What exactly is happening?
Decreasing sight quality, blurriness, distortion.

17. How do you feel?
Besides that, I feel great!

18. How does this affect you?
I read a lot, I’m a photography lover, drive… all things needing central vision are starting to be affected, so I want to stop it before I lose my vision.

19. How does it feel like?
Worrisome, but no physical feeling

20. What comes to your mind?
I meditate, try to cure myself with positive thinking, self-healing, but it hasn’t stopped.

21. One situation that had a big effect on you?
Not sure… perhaps family issues when younger

22. How did that feel like?
Sad

23. What sensation do you experience in that situation?
Sadness, anxiety, irritability.

24. What are you showing by that gesture of your hand (Habits or Actions)?
Always doing something

25. Current and previous remedies/medicines you are taking or took in the past?
None for it, took ventolin as kid for asthma but condition has disappeared

26. Family Background
Mexican father, Swedish mother, two younger brother, one half sister

27. Educational Qualifications of the patient
Master in International and Community Development

28. Nature of work, what do you do for living?
Volunteer, working with children

29. Desires, likes and dislikes for food
Love eating, need to eat lots to keep weight. I like everything except liver: meat, vegetables, fruit

30. Name of foods which increase your problem
None identified

31. Mind-behavior, anger, irritability, hurry, impatient…and so on.. How are you different from other persons, public speaking or not , you can describe all of the details about your behavior, love and affections.
Practice meditation, always willing to help, very patient, can stress easily, but then unstress as quick, difficult to get angry. My mindset is positive, always looking for something new to do. Confident public speaker but sometimes I doubt myself when looking for jobs as there always seem to be something of experience I’m missing… but I know it will come with time!
I struggle expressing my feelings and communicate them orally, but good doing it written. Trying to change that, learning to accept responsibility on my wrong doings. Soon to be married, healthy relationship with fiancee
Quite fearless, love extreme sports, love adrenalin.
Always thinking, open minded, I’m everyone’s friend, people always trust me.

32. Aggravation (increases-time, season,)& Amelioration (Decreases)
None identified

33. Attached here your photographs of the affected area. (if required/optional)
None available

34. Location of the disease
Eyes, cornea

35. Side of the problem (Right or Left), (Upper or Lower part of body)
Both eyes, more on right eye

36. Color of the secretions/discharges e.g urine, stool, sputum, Saliva etc.
Normal
 
dnumdanielem last decade

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