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Chronic Pain - Very Difficult/Complex Case

Hi All!

Don't know if there is anyone out there who can help or not. I have been treated by several homeopathic practitioners over the past few years with really very little success. However, I have tried many many different alternative therapies as well with very little success.

I'm 27 years old and since January of 1998 I have suffered from Chronic Pain (constant, some days are really bad days and some days are normal BAD days, but it's constant all the time, every second of every day) (mostly thighs and groin). In December of 1997 I had some severe gastrointestinal cramping and noticed a swelling type sensation in my right groin/ileocecal region. The muscle/tendon there began to tighten or tense up, then it relaxed, then it tightened up, then relaxed, then tightened up again. (All this over the course of 1 day, then stayed tensed up, contracted). Then over the course of a couple months, the tensing up, or tightening (contracting) of the tendons/muscles slowly spread down my right thigh. After about three months it then spread to my left side starting in the groin area there (same as the other side), and spread down my left leg (again over a period of months). This tensing up or contracting was something that was beyond my conscious control.

Then again after a period of months, I noticed that this then started in my left arm. Started from my wrist and slowly spread up my left arm (all this was over a course of a day, not months) to my shoulder as if it was traveling along my nerve, or up my nerve, through my nerves etc. Then once finished there it spread over to my right arm, same thing, starting from the wrist, spreading up my arm to my shoulder. Again over the course of a day and I could feel it traveling along my nerve up my arm to my shoulders, tensing or contracting my muscles as it went (as it was going I could feel some parts normal and the other parts that it had already traveled through, contracted, tensed).

My muscles everywhere are basically in a state of tension or contraction. I feel as though I have no ability to make a muscle (you know how you do that when you're showing off how big your muscles are, you tense them up), because my muscles are always constantly in a state of contraction. They also get instantly fatigued. Do you know how when you do the wall sit or you reach your PEAK and the BURN starts to set in? Well that's how I get almost right away. My muscles start burning as if I had been exercising for the past few hours with extreme intensity and I just have nothing left to give even though I just started. The severe burn that sets in quickly goes away quickly as well as soon as I stop doing any repetitive or strenuous activity.

My throat muscles are this way as well, and talking can create a burn or quick fatigue in my vocal cords or muscles there. Same sensation, getting tired very quickly and when I stop talking for a few seconds it helps and then I can go again but again get fatigued quickly.

Very little seems to help. I can tell you that human touch helps a lot, however inanimate objects touching me make it worse. So like having a pencil or pen or other things in my pocket or having a book sitting on me, or even the weight of my clothing touching my skin hurts. (Another keynote, hypersensitive to pain). So touch can make it worse unless it's human. I am wondering if it's something to do with providing extra energy to my energy field as to why human touch helps.

Not getting a goodnight's sleep helps a lot. When I first wake up I feel good, but not too long after being awake I get worse progressively. Its almost like when I first wake up my nerves are numb at first from sleeping and so I don't feel the pain at first.

Extreme hot and cold showers help when nothing else does for the pain. But only going from extreme cold back to hot for a split second. Like if I do a really really hot shower (ONLY HOT, makes me feel weaker and more tense. ONLY COLD seems to make me feel more energetic, but I also get the sensation where my limbs feel more swollen with the cold. Almost like (and mostly my legs) I feel energy or I feel sensations extending beyond the physical part of my body. Like measure a couple inches away from my legs and I feel the vibrations there. It's really strange. But as I was saying, if I start with really really hot, and then go to extreme cold, THEN GO BACK TO EXTREME HOT, it's going back to the EXTREME hot that last time that makes me feel so good. If I stop there, it's as if the pain goes completely away, I feel young again NOT like I'm 120 years old. All the congestion in my body breaks up, my joints don't crack or pop. And I feel like I am moving fluidly again, I don't feel heavy, congested, worn down. But this only last for a few seconds.

Extreme temperature changes outside seem to make me worse though. And it doesn't matter if it's HOT one day and then COLD the next or if it's COLD one day and HOT the next, the extreme change makes me worse. For instance, if it's 30 degrees here for several days and the all of a sudden we have a day in the 50's or 60's I can almost always predict when I wake up in the morning that the weather is gonna be really hot out compared to what it had been cause my pain is so much worse. And vise versa for the if it's hot and going to cold.

Generally I feel better in cold weather. And if I'm outside and it's really cold and the wind is really blowing it feels really good to have the wind blowing hard against my body. And the wind blowing also seems to help me feel open and alive and helps depression as well.

Summer time always seems to make me depressed. Heat makes me depressed, all I want to do is sleep. I'm tired all day. No desire to do anything.

I'm very sensitive to chemicals. Cigarette smoke (even smelling it from someone smoking inside their car driving past my house (if i were standing in my yard) a brief second of smelling that can sometimes give me a headache. Very sensitive to paint fumes, exhaust fumes, cleaning supplies, again usually manifesting as a headache.

Anger can make my pain worse (mostly I think because my muscles are tensing up even more).

I'm very sensitive emotionally too and things can really bother me. If someone says something to me hurtful or I'm worried that I hurt someone's feelings (usually from misunderstandings, people don't understand me), I can go into the deepest depression and my pain gets worse. One minor thing can make my whole day worse.

Something else that I have struggled with for many years is a pain or weight or heaviness in my chest that makes me depressed. Sometimes it seems to come and go for no apparent reason. But it's an emotional/SPIRITUAL pain in my chest/sternum area that is a feeling of wanting to die, like the worst thing has happened to me, like I lost my best friend ever, a hopeless, despair, I don't know how to describe it, other than just a deep unhappiness, feeling like I can't go on and often the only thing I can do is SLEEP, because I rarely can function when I feel like this. It affects my whole body in the sense that I have no desire to do anything. Indifference. Some days I just wake up with this feeling for no reason. One homeopath had me one Gelsemium and despite the potency he gave me I seemed to get this often, but I can't say for sure it was connected to the Gelsemium. Natrum Murtiaticum seemed to help a SLIGHT bit with this feeling but nothing real concerete, also seemed to give me a slight bit of energy, but again the affects were so minute, and after time it didn't seem to do anything.

I'm a Pisces and feel emotions very strongly am sentimental. Everything, LOVE (lots of disappointed love relationships over the years), WORRY, HOPELESSNESS, DESPAIR. My pain can be worse as well from dealing with people. I am the type of person who is always there for everybody, to listen to their problems and concerns and have nobody who is there for me most of the time. And I give a lot of my energy to others and this drains me and of course makes my pain worse. Can be somewhat obsessive at times. I usually am very detail oriented, indecisive, never know what to do, always want someone to tell me what to do, cause I just DON'T KNOW.

Screaming would make my muscles/nerves tingle and somewhat lighten my load. Also crying does help me emotionally. Crying after a sad movie. Like, I watched THE NOTEBOOK the other day and it really made me cry, I must have cried for about 20 minutes, but oh my gosh if I could cry more like that I would feel so much better. A lot of emotional pain was lifted and I felt so much LIGHTER. Not as heavy and congested, tired, worn out like normal. Whenever I feel any emotions it's in my chest, where I have that really emotional depression feeling that I sometimes get.

Emotions definitely have an impact on my pain. As when I'm really upset about something my pain is like 10 times worse, I can literally feel my muscles getting more inflammed with strong emotions. And often if they are triggering it to get worse, intensive Bach Remedy Therapy can take me from a REALLY BAD HORRIBLE day to a NORMAL BAD or NOT AS HORRIBLE day.

Also during the time when my pain was progressing, I started developing VERTICAL ridges on my nails. Some nails have many ridges (as many as 30 or 40 on one nail, really close together) running the whole length of the nail, other nails have less, but they are VERY DEEP or pronounced. Also my hair started turning grey at this time as well.

Lately, I'm finding that I will (not often, but every once in a while, every couple days), hiccup at the same time that I burp. I had a few weeks ago had problems sleeping until after like 5:00-6:00 in the morning. Even if I went to bed at 12:00. I would be dead tired physically, but my mind was like locked into hyperdrive so to speak and would not relax. I worked on some liver detoxification. Used Cheldonium and other natural remedies and my sleep seems to be much better. Tongue is somewhat coated white (much more coated the further back you go) and patch of yellow toward the back as well.

Liver Congestion is definitely an issue. I see a health practitioner who does Reams Testing (urine/saliva) and the Liver is always congested. Before all my symptoms began I had been on Accutane a potent Acne Drug for my serious acne. My physician who decided that I was handling the drug well based on my liver tests decided to give me a dosage of the drug that was indicated for people TWICE my weight!! Back then I didn't know any better. And since I had been on that drug (retinol deriviative/Vitamin A) my health has gone way down hill. Used to sweat, don't really sweat any more. And produced oil, my joints were well lubricated, now they are dry and have joint pain.

The pain in my right groin is probably the worst of all the pain. I can only describe it as a severe swelling in that area. As if it were swollen, sometimes I tell people that it feels like a gunshot wound even though I don't know what one feels like. The pain is worse when sitting. Better when standing or laying down.

Even the tendons/muscles in my feet are contracted. Like I feel like I'm walking on my muscles instead of on a cushioning. So my feet hurt very much too, so sitting down hurts my thighs/groin area, and yet standing up hurts my feet. I'm just very weak. Pale.

Slight walking helps the pain, but anything beyond slight makes my muscles fatigued, tired easily. Reptition being much worse of course.

Also of keynote was, several months after the Accutane/Vitamin A, (POSSIBLE FATTY LIVER??), I had some continual vommiting. Everything I ate, I would throw up on, couldn't even keep RICE down. I talked to a homeopathic practitioner and took Kali Bich (I believe 200c, but can't be sure). And was taking it every hour, several times a day, until it stopped and it did stop very quickly). Then I backed off and I think it was just a 30C dose.

Also, before this incident I had a leg inflammation where my whole right leg became inflammed, swollen. And I had tried herbal remedies to no avail and eventually went to the emergency room (interestingly I had a dream a few days before that my right foot became swollen and it had to be amputated), and they gave me keflex (antibiotic) and it cleared up.

Then after my vommiting and kali bich episode we near the December 97 when my pain started in my right groin area and I really felt strongly at the time that it may have been somehow related to the leg inflammation. After that I noticed that I was losing my balance somewhat and then came the progression of the symptoms.

In addition to what I've already stated, sometimes when the pain is really bad, I don't know how to describe it other than saying, my nerves just feel shot, or destroyed, frayed, fried. Like something has short circuited my nervous system, and/or something has just totally drained my body, like it's sucking the life or energy out of me.

Have had tests done and really all that comes up is Creatine Kinase Muscle Enzymes elevated, showing muscle damage (myositis). Basically as if I were going to the gym and punishing my body, even though I'm not.

Lastly, another odd phenomenon, is that often when I've tried natural remedies, whether it be herbs or homeopathics, the first dose I take if the remedy is like really close to being right, i'll get a response where my muscles will start bubbling (almost like how boiling water looks when you see it bubbling in the pot, my muscles will kinda twitch and bubble like that) and when my muscles do start doing that, IT FEELS AWESOME, it feels great, like the pain is going to go away and almost like I'll be cured instantly. But it lasts for only several minutes at the most and then it stops and then nothing after that.

For instance, one night I took Lactic Acid (on my own), 30C and got this effect, I was ready to wake up my whole family and tell them I was cured just like that, cause it seemed to really be working, and then it stopped and the muscles stopped bubbling and went back to the tension they were in and no effect after that. Then I took a 200C and same response, initial, but nothing after that. Then no potency worked.

Also took Botulism (Clostridium) Nosode, again, exact same effect as the lactic acid. Seemed like it would bring a cure instantly, then stopped, no effect after that, higher potency induced the same effect, then nothing after that, and no potency remedy seemed to bring any effects.

Zincum Metallicum 30C seemed to help SLIGHTLY (Somewhat like Natrum Muriaticum 30C did emotionally) with the muscle fatigue, but my homeopath seemed to think it wasn't doing enough or wasn't bringing much response so he switched me.

I've also taken Causticum, Calcarea Carbonica, Pulsatilla, Staphysagria, Phosophorus in 30C potencies. Eupatorium Perforatum in a 30C as well, but that one I could never tolerate, always got terrible headaches from it. Like my whole skull was being crushed or something. My homeopath took me off that one. This was all over 2 years ago, maybe more that I took these remedies under the guidance of a homeopath.

Right now I'm just at a stand still and have tried some things on my own, but just am still not getting anywhere. Does anybody have any ideas, suggestions, or insights? I've consulted with so many practitioners and so many different modalities. My pain just affects me so much every day of my life and I don't know how much longer I can go on like this. I've lost my job, I'm depressed, unhappy (family members told me that I seemed very unhappy even as a child, not like normal kids. Also at five I was worrying about my parents financial matters etc. Took everything seriously). I eat a good diet, (health nut), don't drink alcohol, smoke, etc. There has got to be something that can help, but at the same time feel hopeless about it because I've tried so many different therapies and seen so many practitioners.


Thanks so much for all your help,

Steve
 
  Herbalguy451 on 2005-04-20
This is just a forum. Assume posts are not from medical professionals.
Hi Steve, I have been studying environmental illness these past few years and am researching remedies, but not ready yet. Let's keep in touch?

I have two friends that have practically word for word what you have written.

One thing I have found out about the anger is that the peptides in the brain get scrambled and when it settles there are MORE cells that have attached themselves from anger and this increases the pain.

Hope you are on disability. Congress finally has agreed that this is an actual illness.

It sounds like it began in childhood. Where did you live?

Another person I know that is seriously ill stood out in the fields as a little girl and watched the planes spray the fields......!

You need to get some APIS M 200X OR 12C to keep around for excessive swellings. There may come a time you will need it for swelling in dangerous ways.

Then get some NATRUM SELINICUM 1M. One dose per week for 6 weeks. This may be a long haul with changing remedies.

Watch all the chemicals around you and stop eating night shade foods. Tomatoes, potatoes, peppers, eggplant, sweet pot.,and curries.

Stop eating anything wheat for a month and see if there are any changes in body. Maltodextrine is wheat. Carmel color is wheat. Soy Sauce is wheat. Color in sodas is wheat....sneaky. Don't drink sodas at all. Did you read the Aspertame post?

Let us know if there is any improvements. Do not dispair, we all are working on this. I have people here that bring me "things" that fall from airplanes (chemtrails) and other stuff for me to check out.
a1remedy(at)yahoo.com

Blessings, Sabra
 
sabra last decade
Hi Sabra,

Thanks for the reply! The pain began when I was 20, but yes, much of the sensitivities to chemicals and things began way back when, as far as I can remember. I used to get strep throat all the time as a kid around age 9 until like 13. Sometimes I'd get it 3 times a year and of course was loaded down with Antibiotics. Then that went away, but I started reacting horrible to pollen in the summer times. VERY VERY SEVERELY. Not so bad anymore, but still sometimes have problems. Homeopathic eye drops (similasan)worked very very well (Apis HPUS 6X , Euphrasia HPUS 6X , Sabadilla HPUS 6X).

I did get the Natrum Selenicum 1M and took it as you mentioned and the next morning woke up with really congested head, headache, achy, sinusy feeling, and also right ear felt like it was water logged or underwater. Though last year around this same time I had the same type of problem, ear infection. Used to get them all the time as a kid. Lots of wax build up. But I definitely felt like it was a healing crisis rather than something that I just got or picked up somewhere etc. Like my body was healing and this was just a response. I'm much better now and am getting over it.

Thanks again for all your help and suggestions!

Steve
 
Herbalguy451 last decade
Hello Herbalguy,

I can relate to many of the problems you are listing. For me the problems started after a disc herniation on my neck which resulted in a surgery. Have you taken MRI's to make sure there are not nerve compressions. I am also in pain all the time all day except that my pain is worse when I wake up. I also don't have the allergies problems you have. Following is some things that have helped me out to make a very bad day a normally bad day!!

1..You mentioned about the hot and cold shower. I do the same for my legs – contrast bath. Since it just the legs I can do it several times a day (if needed). Of course it helps only the lower back and legs. I put a chair next to my bath tub. I have two buckets in the bath tub(wide enough to put both my legs). I fill one with very hot water (the hotter the better). The other with ordinary tap water with ice cubes (get the water cold enough so that at least one piece of ice is floating on the water all the time). First I put my legs into the hot water for 3 minutes. Then put my legs into the cold water (1 minute). Then hot water(1 minute), cold water (1 minute), finally end with hot water for 1 minute. Then lie down and rest for 15 minutes. The difference between the two water should be enough so that when you put the legs into cold water (after 3 minutes in hot water) there should be a burn of the skin.

2..When my muscles have cramped up very bad and no medicine can get me out of that cycle, I have a neurologist who gave me Botox injection to the muscles. I don't use Botox cosmetically. But when this doctor gives Botox to my cramped up muscles I get relief for many months. But you have to be very careful picking a doctor to give you injection medically. Wrong dosage, to the wrong muscles can get you into bad trouble. Do it only if you find a proper neurologist who does this regularly.

3..In this forum Mr.Joe has advised how you can take Arnica sucussed to help with the sleep. It has helped me tremendously to get a better night sleep. Even now sometimes I wake up with horrible pain in the middle of the night. But I am so sleepy that I go right back to sleep. Try that if you need help with sleep.

4..I am trying Nat Phose 6X for the food problem, but it is not helping me a lot.

5..Also as Mr.Sabra has mentioned try wheat free. Wheat make my problems unbearable. Doctors have asked me to go milk free also. But with the problems I have with rice/potatoes there is nothing much left to eat. So I drink my milk!!

Just in case any of this is of help …
Regards
 
sammytvm last decade
Mr.sabra,
Could you please elaborate a bit more about one detail you have mentioned "Congress finally has agreed that this is an actual illness ". What is the name of this illness? I am struggling with this since allopathic doctors cannot detect anything they won’t even write a sick leave forget about disability!! Some more details on this would be very helpful.
Also I searched for "Aspertame " in the forum and I don’t find anything. I would be very interested in reading about it.

This pain is so debilitating and affects my quality of life that I am ready to try even research trials. But since I can't figure out a name I don’t know how to pursue it.

Thank you.
 
sammytvm last decade
To sammytvm,

Here is a good site to learn about aspartame.

w w wDOTcurezoneDOTcom/foods/aspartame.asp

A few of the 90 different documented symptoms listed in the report as being caused by aspartame include:
Headaches/migraines, dizziness, seizures, nausea, numbness, muscle spasms, weight gain, rashes, depression, fatigue, irritability, tachycardia, insomnia, vision problems, hearing loss, heart palpitations, breathing difficulties, anxiety attacks, slurred speech, loss of taste, tinnitus, vertigo, memory loss, and joint pain.

^^ A short excerpt.



To All,

When allopathic doctors don't know what is causing your symptoms, they often blame all sorts of things on genetics, this is nonsense.
Genetics does not CAUSE the symptoms, but can allow you to be susceptible to the cause. (Because of a certain genetic make-up, certain types of TOXINS cannot be REMOVED from the body.)
Most symptoms are caused by TOXINS, even bacteria and viruses are not the MAIN cause of symptoms, but the TOXINS they excrete into your system cause the trouble!!

Besides environmental toxins, dental and vaccination's are the two largest direct causes of toxins in the human body.
Follow the links below, and you will be HORRIFIED by the facts, but you will be educated.


The International Academy of Oral Medicine & Toxicology
w w wDOTiaomtDOTorg
The Scientific Case Against Amalgam
w w wDOTiaomtDOTorg/articledetails.cfm?artid=99

Amalgam page, amalgam - mercury health risk
w w wDOTcurezoneDOTcom/dental/amalgampage.asp
ROOT CANALS POSE HEALTH THREAT
w w wDOTcurezoneDOTcom/dental/root_canal.asp

Dr Huggins
w w wDOTdrhugginsDOTcom
A 17+ minute audio interview. (Very informative)
w w wDOTdrhugginsDOTcom/default.asp?PageName=Healthy%20Talk%20Radio%20Interview

Preventive Dental Health Association
emporiumDOTturnpikeDOTnet/P/PDHA/health.htm


The trouble certain vaccination's cause
w w wDOTautismmediaDOTorg/index.html
w w wDOTtddmpsDOTcom


PS Remove the DOT and replace with "." and remove the spaces between the w w w.


God Bless,
Tim
 
TimCam last decade
Thank you Tim.
Regards
Smitha
 
sammytvm last decade

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